What Mattered Then, Now, and Always

Illness Narratives From Persons of Color

C. Robert Bennett, CPNP-AC, MSN; Nadia Shive, BA, CCRC; Heather Coats, PhD, APRN-BC


Journal of Hospice and Palliative Nursing. 2020;22(5):392-400. 

In This Article


First, recruitment at a single academic medical center was a limiting factor for this study. Transferability of these results may be partly limited by the geographic region and therefore may not represent a wide range of cultural experiences of persons of color who have serious illness residing in other parts of the country. Second, it should be noted the data used for the analysis were previously collected, cocreated illness narratives between patients and the last author from a prior study and not a data set of raw verbatim interview transcripts. Despite these limitations, data analysis for this article included two outside members, the first and second authors, who independently coded the illness narratives to decrease bias of the last author who had been involved in the primary study. Third, use of secondary data and the application of Newman's[7] conceptual framework was not the original theoretical framework of the primary study, although Newman's framework aligns with the person-centered whole-person approach to the primary study based on the National Consensus Project guidelines.