Patient Perceptions of Gout Management Goals

A Cross-Sectional Internet Survey

Jasvinder A. Singh, MBBS, MPH; N. Lawrence Edwards, MD


J Clin Rheumatol. 2020;26(4):129-133. 

In This Article


We invited people visiting the Gout and Uric Acid Education Society's (GUAES) website ( to participate in a brief anonymized Internet survey on a voluntary basis between January and December 2017. The Gout and Uric Acid Education Society (GUAES) is a 501c3 non-profit organization of health care professionals dedicated to educating the public and health care community about gout and its related comorbidities and undertake quality assurance/quality improvement (QA/QI) initiatives for patients with gout. As a QA/QI initiative, this study did not require an approval from the Institutional Review Board. We kept the survey online intermittently for no more than 3-weeks at a time, as per GUAES website policy regarding posting surveys on this primarily patient education/support website. The goal of this policy is to avoid discouraging website visits by patients seeking information on gout. In addition to the demographics, we collected information on the duration of gout diagnosis, gout flares, receipt of allopurinol or febuxostat prescriptions and adherence (the number of days ULT was missed). The survey queried patient/respondent perception of gout management and their satisfaction with provider, gout treatment goals, and the most important things that could make their gout treatment most successful and satisfactory. We used chi-square test for categorical or t-test for continuous variables. A p-value <0.05 was considered statistically significant.