Marked Deterioration in the Quality of Life of Patients With Idiopathic Pulmonary Fibrosis During the Last Two Years of Life

K. Rajala; J. T. Lehto; E. Sutinen; H. Kautiainen; M. Myllärniemi; T. Saarto


BMC Pulm Med. 2018;18(172) 

In This Article


Patients with IPF suffer from exceptionally low HRQOL together with severe breathlessness and fatigue already two years before death. In addition, physical and emotional wellbeing further deteriorates near death concurrently with escalating overall symptom burden. In clinical practice, structured measurements of HRQOL and symptoms are necessary to guide high-quality early-integrated palliative care and end-of-life planning in IPF patients.