Predictors of Quality of Life in 165 Patients With Acromegaly

Results From a Single-Center Study

Ilonka Kreitschmann-Andermahr, MD; Michael Buchfelder, MD; Bernadette Kleist, CN; Johannes Kohlmann, MD; Christa Menzel, RN; Rolf Buslei, MD; Maria Kołtowska-Häggström, MD; Christian Strasburger, MD; Sonja Siegel, CP

Disclosures

Endocr Pract. 2017;23(1):79-88. 

In This Article

Conclusion

In summary, our study identifies new predictors of poor QoL and confirms those already known in patients with acromegaly. Management of the biologic aspects of the disease improves life expectancy but does not necessarily address issues that may be of paramount importance to the patient. Delay of healthcare provision and poor diagnostic acumen, as measured by diagnostic delay and a number of physicians consulted, are strong factors in determining the individual's experience of their disease and their perceived QoL. Our findings align with those obtained by Hutchinson and colleagues,[36] who concluded that an efficient management model for patients with chronic diseases should first focus on medical treatment but should soon after include strategies to alleviate QoL and facilitate patient health independence. Therefore, the goal of healthcare providers should be to design and provide a comprehensive model of care for patients with acromegaly. Such a model, based on an efficient healthcare system, would ideally address various medical, psychological and social aspects and incorporate them into multidisciplinary services at every stage of patient management.

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