Epidermal Necrolysis: 60 Years of Errors and Advances

Y.K. Heng; H.Y. Lee; J.-C. Roujeau

Disclosures

The British Journal of Dermatology. 2015;173(5):1250-1254. 

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Future Priorities

The establishment of an international network of expert centres is key. Such a network of centres would foster greater international collaboration in patient care/research and would make the conduct of a RCT in such a rare disease possible. Future research priorities include understanding the interaction between human leucocyte antigen and disease mechanism, systematic evaluation of the disease sequelae and its mechanism as well as better evaluation of risk factors for developing EN. Priorities in patient care would include the evaluation of novel treatments that inhibit granulysin. Other considerations and priorities would include the involvement of pharmaceutical companies and regulatory agencies in funding/research, the implementation of risk management programmes and compensation for victims for such rare reactions. Taken together, these measures will improve our disease understanding, optimize patient care and help decrease the burden of EN on public health.

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