The Diagnostic Delay and the Increase of New Diagnoses: Is It a Contradiction?
Ernst's story shows how a delay in FPIES identification, until a third episode, is not so rare. Fortunately, in the last 5 years there has been more information about this syndrome, so that doctors are more aware of it. In our experience, 10% of children presented almost four episodes before the diagnosis was made and a few of them had even ten adverse reactions before a solution was found. A few years ago, we ourselves were wrong, and you will read about what happened to Katie in 2004 below.
Expert Rev Clin Immunol. 2013;9(8):707-715. © 2013 Expert Reviews Ltd.