Mohammad KA Basra; Muhammad Shahrukh

Disclosures

Expert Rev Pharmacoeconomics Outcomes Res. 2009;9(3):271-283. 

In This Article

Bullous Disorders

A number of autoimmune bullous diseases often affect an older age group who may suffer psychosocial trauma due to lack of support from the family members, which may result in depression.[141] Protection from friction, avoidance of constriction or abrasion and provision of climate control to avoid overheating needs appropriate clothing and footwear such as cotton or fleece with padding on bony prominences, so they may have a restriction on wearing the clothes of their choice.[116] Diseases such as epidermolysis bullosa (EB), which need constant care of patients, can be psychologically taxing and financially draining for the patient's family.[142]

In a study of patients with inherited EB, 60% of the parents reported a negative impact of looking after the child on their family relationships and their private lives.[142] The discussion between the parents was mostly focused on their child and his/her condition. The fear of having another offspring with EB posed a restriction on their sexual relationships and many of them underwent permanent sterilization.[142]

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