Outcomes of Congenital Heart Disease: A Review

Angela Green


Pediatr Nurs. 2004;30(4) 

In This Article

Recommendations for Future Research

The literature indicates that individuals with CHD are surviving longer, but suggests that many areas of the individual's and family's lives are affected. Neurodevelopmental outcomes, behavioral outcomes, and psychosocial outcomes have been studied most extensively, and there is a growing body of literature on specific abnormalities in children and adults with CHD. Significantly less attention has been paid to the symptom experience and QOL of individuals and their families. Research is needed in these areas to provide a basis for interventions to improve outcomes. Except in the case of neurodevelopmental outcomes, more is certainly known about adult survivors of CHD than affected children. Research is needed on the experiences of children to identify problems and develop interventions early in life that may improve both short- and long-term outcomes. Finally, in the U.S. more research is needed on QOL in children and adults with CHD. While the findings of international studies provide valuable data, one cannot assume that the experiences of survivors in the U.S. are like those of survivors in other countries. Studies of QOL in this population can build on international data and on the data on QOL in other chronic childhood illnesses.

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