Sarcoidosis: An Update for the Primary Care Physician

Oluranti A. Aladesanmi, MD, MPH

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In This Article

Other Resources for Patients

The role of online discussion groups as a source of patient advice is increasingly being recognized. These online support groups take different forms, including bulletin boards, chat rooms, instant messaging, and listservs. Patients with chronic medical conditions, including sarcoidosis, who are Internet users participate in these groups. It has been reported that about 54% of Internet users participate in online support groups.[23]

The National Sarcoidosis Resource Center was founded by a patient who reports that she "knows first-hand the frustrations and obstacles that are often encountered by persons with this disease." The organization is international, with a registry of more than 30,000 patients, and is available online at: http://www.nsrc-global.net.

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