Highlights From the Annual Clinical Genetics Meeting

Siobhan Dolan, MD

Disclosures

April 07, 2003

In This Article

Professional Education in Genetics

In a platform presentation, Terri Creeden, a genetic counselor and Director of Professional Genetics Education at the March of Dimes, presented Genetics & Your Practice Online, an interactive genetics information resource and continuing education program.[10] This resource will be available online soon at: http://www.marchofdimes.com/gyponline. It is available for free and only requires a very brief registration process. The project was funded by the Robert Wood Johnson Foundation.

Ms. Creeden began her talk by discussing the needs assessments that were performed before designing this Web site. Specifically, primary care providers revealed that they were interested in learning about algorithms for understanding how to manage genetic disease in their practices. Providers stated that they did not want to become genetic experts, but they were interested in tools that would assist them in identifying possible genetic disease and making appropriate referrals. Ms. Creeden explained that the goals of the Web site are to: (1) provide algorithms for testing and screening for genetic disease; (2) provide resources to identify and refer to genetic professionals in the community as appropriate; and (3) provide resources to help patients understand genetic disease, specifically through patient education brochures. Providers stated that they were also interested in continuing medical education credits.

The Web site is designed around case studies that are customized for the particular types of providers that may use the site, such as pediatricians, family practitioners, and obstetrician/gynecologists. Ms. Creeden previewed one case in which a family grapples with CF screening in the setting of a new pregnancy. The case study identifies the key medical issues as well as financial, ethical, legal and social issues.

Other online case studies include screening for breast and ovarian cancer, hemochromatosis, and hyperlipidemia.

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