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NORD Expert Commentary
Step Up and Advocate for Rare DiseasesNORD's vice president for public policy Diane Dorman appeals to the medical community for their help in improving treatments and access to treatments for all rare disorders.
The National Organization for Rare Disorders, December 08, 2014
A Golden Age for Rare DiseasesMarshall L. Summar, MD, talks to Medscape about the role of patients and families, advocacy groups, and patient registries, in furthering our understanding of rare diseases.
The National Organization for Rare Disorders, April 23, 2014