NORD Expert Commentary

  • Step Up and Advocate for Rare Diseases   NORD's vice president for public policy Diane Dorman appeals to the medical community for their help in improving treatments and access to treatments for all rare disorders.
  • A Golden Age for Rare Diseases Marshall L. Summar, MD, talks to Medscape about the role of patients and families, advocacy groups, and patient registries, in furthering our understanding of rare diseases.