What is included in patient education about pediatric nephrotic syndrome?

Updated: Mar 04, 2020
  • Author: Jerome C Lane, MD; Chief Editor: Craig B Langman, MD  more...
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Answer

Soon after nephrotic syndrome is diagnosed, the patient and the family should be educated about the disease, its management, and its expected course. The family should participate in therapeutic decisions and should be encouraged to adhere to the medical regimen.

As with all chronic illnesses, many psychosocial issues may need to be addressed, including (but not limited to) the following:

  • Behavior

  • Adherence to medication

  • Adequate parental/caretaker supervision

  • Medical insurance

  • Missed work and school due to hospitalizations and outpatient visits

Consultation with social workers and mental health care workers may be useful.

Links to resources for parents can be found at the Web sites for the American Society of Pediatric Nephrology (ASPN) and the National Kidney Foundation.


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