What resources are available for parents of a child with Down syndrome?

Updated: Apr 30, 2018
  • Author: Gratias Tom Mundakel, MBBS, DCH; Chief Editor: Maria Descartes, MD  more...
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Answer

A parent’s guide to the genetics of Down syndrome is available. [9]  Parents might benefit from joining a local Down syndrome support group. Additional resources can be obtained from the following organizations:

Books for parents [2]

  • Skallerup SJ. Babies with Down Syndrome: A New Parents Guide.
  • Pueschel SM, ed. A Parent's Guide to Down Syndrome: Toward a Brighter Future.
  • Simmons J. The Down Syndrome Transition Handbook: Charting Your Child's Course to Adulthood

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