What information about congenital adrenal hyperplasia (CAH) should patients and caregivers receive?

Updated: Oct 06, 2020
  • Author: Thomas A Wilson, MD; Chief Editor: Sasigarn A Bowden, MD  more...
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Answer

Educate the caretakers and patients about the nature of the disease in order for them to understand the importance of replacement of the deficient adrenal cortical hormones.

Patients must also understand the need for additional glucocorticoids in times of illness and stress in order to avoid an adrenal crisis.

Patients must know the importance of IM injections of glucocorticoids and be educated in the technique of IM administration.

Useful Web sites for patients and parents include the National Adrenal Diseases Foundation and the Congenital Adrenal Hyperplasia Research Education and Support (CARES) Foundation.


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