What is involved in the patient education on alpha1-antitrypsin deficiency (AATD)?

Updated: Sep 11, 2020
  • Author: Dora E Izaguirre Anariba, MD, MPH; Chief Editor: John J Oppenheimer, MD  more...
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Answer

Several organizations offer patients and family members education, support and opportunities to participate in research. The Alpha-1 National Association offers a telephone hotline (1-800-4ALPHA-1), a national newsletter (Alpha-1 News), and local support groups that provide information and support for patients, their families, and their caregivers. In addition, the AlphaNet and the Alpha 1 Foundation, organizations that provide services to patients and a research focus. The Alpha-1 Advocacy Alliance information line is 1-866-For-A1AA.

Protein is important for lung health. Patients may benefit from increased protein intake, ideally from nonmeat sources such as tofu, beans, and nuts. As this condition also affects the liver, alcohol consumption should be severely limited or eliminated completely.


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