What information should be given to patients at high risk for renal cell carcinoma (RCC)?

Updated: Jun 08, 2020
  • Author: Kush Sachdeva, MD; Chief Editor: E Jason Abel, MD  more...
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Answer

Patients with a family history of genetic syndromes associated with increased risk for renal cell carcinoma should be educated about these syndromes, and genetic counseling should be offered to the patients and family members. For example, renal cell carcinoma develops in nearly 40% of patients with von Hippel-Lindau (VHL) disease and is a major cause of death in patients with that disorder.

Patients at high risk should be made aware of the early signs and symptoms of the disease, and the need for early intervention for possible cure should be stressed. For patients with early-stage disease who have undergone treatment, education about possible relapse should be provided.

For patient education information, see the Kidney Cancer Directory.


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