What is included in long-term monitoring of factor XIII (FXIII) deficiency?

Updated: Mar 09, 2021
  • Author: Robert A Schwartz, MD, MPH; Chief Editor: Perumal Thiagarajan, MD  more...
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Clinic-supervised outpatient care is an extremely important part of treatment. Complete annual physical examinations and laboratory testing for inhibitors, hepatitis, and HIV infection, as well as other tests, should be performed as needed. As in persons without hemophilia, routine care should be provided to patients with FXIII deficiency, including examination of stool for blood, rectal examination, colonoscopy, prostate-specific antigen determinations, mammography, and dental care. Physical therapy may be needed for the long-term care of affected joints. Prophylactic care includes vaccination for HAV [128] and HBV and other routine vaccines.

Notify the local chapter of the National Hemophilia Foundation regarding the patient so that proper statistics can be provided to the appropriate agencies for adequate federal and state funding of patient care.

Provide counseling and classes to encourage questions and to help solve problems, such as possible ways to avoid transmission of HIV to an uninfected spouse and to children. [129]

An appointment with a psychosocial worker at the time of counseling ensures that other psychological, social, and economic support is provided.

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