What is included in patient education about beta thalassemia?

Updated: Nov 27, 2019
  • Author: Pooja Advani, MD; Chief Editor: Emmanuel C Besa, MD  more...
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Answer

Educate patients with thalassemia minor about the genetic (hereditary) nature of their disease, and inform them that their immediate family members (ie, parents, siblings, children) may be affected. The presence of beta-thalassemia minor in both parents implies that there is about a one fourth chance that a child will have thalassemia major. Careful genetic counseling is also appropriate for patients in whom one parent has beta-thalassemia minor and the other parent has some form of beta-globin–related disease, such as sickle cell carriage.

Inform patients with thalassemia minor that they do not have iron deficiency and that iron supplementation will not improve their anemia.

For patient education information, see the Thalassemia Directory.


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