What are the treatment recommendations for pregnant carriers and newborns with factor IX deficiency (FIX) (hemophilia B)?

Updated: Mar 09, 2021
  • Author: Robert A Schwartz, MD, MPH; Chief Editor: Srikanth Nagalla, MD, MS, FACP  more...
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Answer

A review of written guidelines and practices of obstetricians, hematologists, and neonatologists in the United States for the treatment of pregnant carriers and newborns with hemophilia and intracranial hemorrhage (ICH) showed that more than 94% of the major facilities reviewed had no written guidelines. Survey findings led to the following recommendations [26, 27] :

  • Vacuum devices and fetal scalp monitors should not be used during vaginal delivery of known carriers of hemophilia
  • All infants with intracranial hemorrhage should be evaluated for a bleeding disorder,
  • Women with postpartum hemorrhage should have a coagulation workup
  • A national registry should be created
  • National guidelines should be developed, which should improve care for pregnant women with bleeding disorders

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