What educational information should be given to patients with Parkinson disease (PD)?

Updated: Jan 24, 2019
  • Author: Robert A Hauser, MD, MBA; Chief Editor: Selim R Benbadis, MD  more...
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Answer

Patients with Parkinson disease should be encouraged to participate in decision making regarding their condition. [23] In addition, individuals and their caregivers should be provided with information that is appropriate for their disease state and expected or ongoing challenges. [21] Psychosocial support and concerns should be addressed and/or referred to a social worker or psychologist as needed.

Prevention of falls should be discussed. The UK National Institute for Health and Clinical Excellence has several guidance documents including those for patients and caregivers.

Other issues that commonly need to be addressed at appropriate times in the disease course include cognitive decline, personality changes, depression, dysphagia, sleepiness and fatigue, and impulse control disorders. Additional information is also often needed for financial planning, insurance issues, disability application, and placement (assisted living facility, nursing home).

For patient education information, see the Brain & Nervous System Center, as well as Parkinson's Disease Dementia.


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