Which specialist consultations are beneficial to patients with autoimmune lymphoproliferative syndrome (ALPS)?

Updated: Jul 29, 2019
  • Author: Akaluck Thatayatikom, MD, RhMSUS; Chief Editor: Harumi Jyonouchi, MD  more...
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Answer

As with many chronic illnesses in pediatric or adult medicine, a team approach is required to serve the patient best. A pediatric hematologist and immunologist experienced in diagnosing and treating patients with ALPS and associated cytopenias should act as the treatment team leader. The team should also include a geneticist, a rheumatologist, an occupational therapist, a general pediatrician or internist, and a social worker.

School attendance, compliance with prescribed medications, and plans of action for febrile episodes in asplenic individuals should be discussed and reinforced. Telemedicine may play a role in long-distance consultation and treatment of patients with ALPS who reside at greater distances from full-service institutions.


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