What are the AAN/AANEM treatment guidelines for musculoskeletal complications in patients with congenital muscular dystrophy?

Updated: Aug 17, 2020
  • Author: Twee T Do, MD; Chief Editor: Jeffrey D Thomson, MD  more...
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Answer

The AAN/AANEM guidelines recommend the following [77] :

  • Refer to allied health professionals, including physical, occupational, and speech therapists; seating and mobility specialists; rehabilitation specialists; and orthopedic surgeons, to help maximize function and potentially slow the progression of musculoskeletal complications (level B)
  • Range-of-motion exercises, orthotic devices, heel cord–lengthening procedures, or a combination of these interventions may be recommended in certain circumstances (level B)
  • Avoid using neuromuscular blocking agents (eg, botulinum toxin), unless the contractures are determined to cause significantly greater impairment than would any potential worsening of weakness in the targeted muscle groups (level C)

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