What are the AAN/AANEM treatment guidelines for complications from dysphagia in patients with congenital muscular dystrophy?

Updated: Aug 17, 2020
  • Author: Twee T Do, MD; Chief Editor: Jeffrey D Thomson, MD  more...
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Answer

The AAN/AANEM guidelines recommend the following [77] :

  • Neuromuscular specialists should coordinate with primary care providers to follow nutrition and growth trajectories in patients with CMD (level B)
  • Multidisciplinary evaluations with swallow therapists, gastroenterologists, and radiologists if there is evidence of failure to thrive or respiratory symptoms (or both) (level B)
  • A multidisciplinary care team, taking into account medical and family considerations, should recommend gastrostomy placement with or without fundoplication in the appropriate circumstances (level B)

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