Which specialists should be included in a multidisciplinary team for the management of muscular dystrophy?

Updated: Aug 17, 2020
  • Author: Twee T Do, MD; Chief Editor: Jeffrey D Thomson, MD  more...
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Answer

The authors of the AAN/AANEM guidelines base some recommendations in part on evidence from other neuromuscular disorders of childhood because of a lack of literature directly relevant to CMDs. As with other forms of muscular dystrophy, multidisciplinary teams should include the following:

  • Neuromuscular specialists, particularly child neurologists and physiatrists with subspecialty training
  • Physicians from other specialties (eg, cardiology, gastroenterology, neurology, ophthalmology, orthopedic surgery, pulmonology)
  • Allied health professionals with relevant expertise (eg, dieticians, genetic counselors, nurses, nurse practitioners, occupational therapists, physical therapists, speech-language pathologists)

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