What is included in the long-term monitoring of Emery-Dreifuss muscular dystrophy (EDMD)?

Updated: May 23, 2019
  • Author: Eli S Neiman, DO, FACN; Chief Editor: Amy Kao, MD  more...
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Answer

Patients with EDMD should be seen at least yearly by a neurologist and cardiologist, especially if placement of a permanent cardiac pacemaker is being considered.

At each visit, monitor muscle function, contractures, ability to perform activities of daily living (ADLs), and cardiac function.


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