What is included in patient education about sporadic inclusion body myositis (s-IBM)?

Updated: Jun 08, 2018
  • Author: Michael P Collins, MD; Chief Editor: Nicholas Lorenzo, MD, MHA, CPE  more...
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Answer

The treating physician must maintain an ongoing dialogue with patients to keep them informed about the status of their disease.

While patient issues should be addressed as needed, the physician must be proactive and anticipate issues such as difficulties with driving.

The treating physician always should maintain a balance between the reality of the patient's disease progression and a sense of hope and ability for the patient to cope with the disease.

Information resource for patients:

  • The Myositis Association provides information on polymyositis, dermatomyositis, and s-IBM.

  • Address: 1737 King St, Suite 600; Alexandria, VA 22314

  • DC area phone: 703-299-4850

  • Toll-free phone: 800-821-7356


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