What is included in the long-term care for stiff person syndrome?

Updated: Jun 14, 2018
  • Author: Nancy Theresa Rodgers-Neame, MD; Chief Editor: Nicholas Lorenzo, MD, MHA, CPE  more...
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See the list below:

  • Ongoing physical therapy and occupational therapy

    • Physical and occupational therapists can help with long-term muscle control and also serve as an adjunct to clinical observation for worsening signs and symptoms. They can also use passive muscle relaxation techniques that can help to relieve symptoms of long-term muscle spasm and to avoid loss of range of motion.

    • Be sure to encourage therapists to send reports or call staff about changes.

  • Medications

    • Symptomatic medications, particularly benzodiazepines, may need to be changed or rotated often to avoid receptor down-regulation.

    • Because the disease is rare, do not overlook novel medications that have not been reported but that have potential utility.

  • Intravenous immunoglobulin

    • Outpatient IVIG can be used in patients with responsive symptoms as ongoing therapy. [26]

    • Appropriate monitoring of vital signs should be available, and the procedure should be performed in an approved chemotherapy unit.

    • As in the inpatient setting, response should be documented carefully.

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