Where can patient resources about complex regional pain syndrome (CRPS) be found?

Updated: Jun 20, 2018
  • Author: Gaurav Gupta, MD; Chief Editor: Stephen A Berman, MD, PhD, MBA  more...
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Answer

Online Patient Education Resources

There are a number of online resources that patients may find to be helpful. Four sites are listed below. Patients should be mindful of the fact that not all online information is reliable. Disparities can be found between information on different sites or even between information on different parts of the same site. These online resources should be view as a starting point for discussion between the patient and her or his healthcare provider.

American Chronic Pain Association

https://theacpa.org/

American RSDHope

http://www.rsdhope.org/crps.html

International Research Foundation for RSD/CRPS

http://www.rsdfoundation.org/

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

http://www.rsds.org

 

Many patients inquire about clinical trials of new treatment methods.

The website www.clinicaltrials.gov  is a good source of information about clinical trials on CRPS (and most other disease). The specific link within this site to CRPS is https://clinicaltrials.gov/ct2/results?term=Complex%20Regional%20Pain%20Syndrome

One can also use the site’s own search function.


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