What is included in patient education about pediatric mixed connective-tissue disorder (MCTD)?

Updated: Oct 24, 2018
  • Author: Marisa S Klein-Gitelman, MD, MPH; Chief Editor: Lawrence K Jung, MD  more...
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Answer

See the list below:

  • Patient and family must have a thorough understanding of the disease, potential severity, and complications from the disease and therapy. Treatment of the individual with mixed connective tissue disease is difficult, especially for adolescent patients. The physician, parents, and/or caregivers should expect issues including depression and noncompliance. They must be prepared to work together with the patient toward a better outcome.

  • Knight et al aimed to characterize the prevalence of depression and anxiety in pediatric systemic lupus erythematosus and mixed connective tissue disease patients and determine their association with healthcare utilization. Depression and anxiety symptoms were prevalent in patients with SLE/MCTD, and suicidal ideation significantly more common in SLE/MCTD than in healthy subjects. Despite prevalent symptoms, there were poor rates of prior mental health treatment, and less frequent PCP visits among those with depression symptoms. The authors concluded that further investigation of barriers to mental health care and interventional strategies for symptomatic youth with SLE/MCTD is needed. [17]


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